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Sometimes I Get So Mad

So for those of you who’ve been reading my blog for a while, or who’ve read the About Me section, will know, Vitalabis my second fertility clinic, I’ve been with them for exactly a year now. And its been a year of really having my eyes opened. I didn’t want to leave my previous clinic, I went to Vitalab underduress and pressure from my husband and my friends. I went witha bad attitude, determined to find fault with them. Instead, they have completelywon me over with the level of care and their extremely high standards. In addition, they’ve also poked massive holes all of the care and treatment I’d received previously. Just about every time I’m there I learn something new, something that points out just how miserably my previous treatment failed me, for eg: my scan assisted ER on Tuesday that showed my cervix measuring 6.5cm’s and making me truly wonder about my previous IVF’s.

I’ve had to work hard at trying to put my previous experience behind me, there are a lot of things I have not shared on this blog, but things that my DH and I were put through at the previous clinic that should not have happened or if they had happened should not have happened the way they did. Those of you who know us will know what I’m referring to.

One of the greatest failures of my previous clinic was the fact that they do not include an HSG as part of their investigations. Now that I’ve had an HSG I realize just what a great failure this is, now that I’ve move to Vitalaband have convinced a number of friends to move with me, and we’ve all gone through our first HSG’s ever, now I can see what a great failure this is.

At the time of my HSGwe were to discover for first time ever the full extent of my internal problems. My previous clinic had noted during a lap procedure with them that my right tube was blocked, but by not doing an HSG they had in fact missed out on the following:

A partial Uterine Septum

A Uterine Polyp

And what I was later to discover was NOT just a blocked tube but was in fact a Hydrosalpinges

blocked-tubes

I also had uterine scarring and the only surgery ever performed on my uterus was by my previous clinic to remove Fibroids and pelvic lesions.

So, while under their care, I had all of the above mess going on inside me, I underwent countless timed and triggered cycles,  3 IUI’s, 2 full IVF’s and 1 Natural IVF, all of which were doomed to fail because of the total mess inside.

When I had my surgery with Vitalabto repair all of the damage, afterwards, Dr G told W and I that after seeing the state of my right tube, he is convinced that its the reason for all of my treatment failures and also for all of my miscarriages as the tube was filled with a combination of pus and fluid.

I hadn’t really given any of it too much thought till I was on the Fertilicare Knowledge Base last week and saw his question and the corresponding answer from Dr V:

LATEST QUESTIONS


 

I just wanted to know from Dr V how do pelvic adhesions affect ICSI/ET & implantation. I have pelvic adhesionsand suffer with very painful cycles because of this. FS doesn’t want to attempt removing the adhesions just yet, at until we have 1 child as the adhesions are quite bad and he is concerned about complications. I just wanted to find out how the adhesions affect ICSI?

March 6th, 2009

 

Pelvic adhesive disease per sae, does not influence ICSI/ET. The question is why the pelvic adhesive disease is present in the first place and more importantly, whether it is accompanied by blocked tubes that may lead to hydrosalpinges( tubes blown up and filled with water or pus) The presence of hydrosalpinges alone seems to be detrimental to the outcome of ICSI/ET and has been shown to reduce the success rate by as much as 50% until having been surgically addressed. Furthermore, stage 3-4 endometriosis, that can also lead to pelvic adhesions , has been shown to have a reduced success rate until having been surgically improved.

– Week 31 answers kindly provided by Dr. Stephan Volschenk –

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9 Comments

  • Reply CeCe Garrett

    I am a research freak. I mean out of hand.. and I know.. like know-know what that anger feels like. Sometimes when everyone is asleep and I am left to my thoughts (not a good thing) I get SO angry at the doctors that screwed me over. I mean.. if you can google and find more info than your doctors give you? Something is not right. I mean, I guess you could demand your money back from the previous clinic… but really is it money that they took that’s hurting you or is the hope? They stole hope an optimism and the notion that all doctors are honest.

    I grappled with it for some time… and recently sent a letter to the OB that wouldn’t order the 75 dollar lab test that might have saved our Eli. I doubt he cared… but it felt good to get my peace.

    I am praying that in a few more days … all of this will be SO worth it. I’ve put in my order for you.. two sticky beans.

    Love and Blessings,
    CeCe

    March 19, 2009 at 8:01 am
  • Reply Amanda

    I hear you Sharon! E was at that very same clinic, and wasted precious time with them! They screwed up so badly and bulshitted her about what was really going on! If you hadn’t sent her to Vitalab then I don’t know what would have happened to my sister, I do get very angry at the thought that countless women will have the same fate, these people need to get exposed!
    I love all the Doc’s at Vitalab!
    And am waiting to hear your beta count soon!

    March 19, 2009 at 8:45 am
  • Reply Michelle

    I get so mad when I hear more and more about how “that” clinic messed up for so many of us!! Blood pressure goes up a few notches!! Urgh!!
    I can’t tell you how happy I am that we all found VL!! What a pleasant experience they make of a not so pleasant situation.

    March 19, 2009 at 9:52 am
  • Reply dee

    Never said this to you before but my first call was to go to your prev clinic, I made the appt and everything but call it instinct or whatever but I phoned to cancel as something didnt feel right. Now I realise that many ppl reading here may go to the other place but you need to do what “feels right” to you, something didnt feel right to me which is how I ended up at VL. Ive never been anywhere else but I have a feeling I might be shocked at how other clinics operate.

    Im sorry about what you had to go thru but Im not sorry that your family and friends made you get a 2nd opinion because you may have very well given up!

    March 19, 2009 at 11:13 am
  • Reply Katie

    OMG Sharon I’m so sorry. I would be seriously pissed too finding this out! What a waste of time, money, and energy.

    March 19, 2009 at 6:34 pm
  • Reply Betty

    In my honest opinion I think these Drs need to be reported, and very soon. Although they probably have successful IVF’s etc they cannot treat everyone the same way. The people who gets BFP’s through them obviously have no uterine or tubal abnormalities, but it is wrong to not cater to those who do, AND to keep on wasting money on procedures that just aren’t working. They have a moral obligation to exhaust all routes before continuing on a certain path. It just smacks of greed and arrogance. I felt very uncomfortable in their care. I had a negative feeling from the start, and the first meeting my hair rose on the back of my neck when the doc opened his mouth. My first instinct was to go to Vitalab, but because my gynae reffered me, I thought I should stick it out. BIG mistake. I have NO respect for them whatsoever, and recent events just confirmed that feeling even more. They have no scruples and no compassion. I don’t want to tread on anyones toes, and I know there are a lot of girls who are very happy with them, but there seems to be a general feeling of dislike for them that just cannot be ignored. I truly hope they take the complaints to heart and try and work at doing better, try and work at improving their image because if they don’t do it then they truly are arrogant.
    (I changed my name due to reasons unknown to me, guess I just felt I should)

    March 19, 2009 at 10:13 pm
  • Reply C

    Oh Shaz, I try hard to get past what happened to us there but weekly I hear horror stories and get angry all over again. I am so happy that you moved.

    March 20, 2009 at 10:05 am
  • Reply Selmada

    They missed so much with not doing an hsg. I had one. It was so surprising that my tubes were clear. I have a ton of smaller fibroids (my uterus is very lumpy).
    As for adhesions. I read any and all literature on it and I discussed it with a few specialists. I have adhesions, well for sure I had them when I was starting IVF/DE. It was confirmed by laprascopic surgery that I had advanced stage IV endo. I had large cysts on each ovary, which were wrapped around the bowel and fused to each other. My entire pelvic area was adhesion central – a term that is called ‘frozen pelvis’ (which makes me sound like a fun person). I really wanted the adhesions removed. No doctor would do it. Too much of my insides were impacted and I risked not only damage to mulitple organs, but the reality that they would come back fairly quickly. The recommendation I had was supression therapy for 3 months before my DE attempt. Since that was already scheduled for 6 weeks from them, I was only able to supress for 4 weeks (lupron depo). I got pregnant that cycle. So it is possible to get pregnant with extreme adhesions. It is harder (it wasnt my first try).
    In theory, adhesions soften and shrink during pregnancy. I’m not sure what state I’ll be in once the boys come.

    March 20, 2009 at 6:59 pm
  • Reply Stop Fibroids

    Thanks for this great post Im pretty sure that many people are searching informative post like yours .

    May 19, 2009 at 5:23 pm
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