I have learned many many lessons along this infertility journey, they were all tough and hard and took there toll, but there is one lesson above all others that I have learned that I wish every single infertile out there could learn and learn quickly so that they don’t have to deal with the consequences of this lesson. I’ve blogged about this before, but I feel I need to blog about it over and over and over again in the hope that NOBODY else will have to go through this!
The lesson is this: Our RE’s are human beings and human beings make mistakes! We have the right to question and re-question EVERYTHING they tell us. They are NOT God and if you have an RE with a God complex run, run as fast as your infertile little legs will carry you.
So sorry for those of you who have heard my story before but please bare with me, this is something I feel extremely passionate about, mostly because I’m not the only one who has suffered like this and I probably won’t be the last, but I’m a woman on a mission! For starters, if I could, I’d sue the RE that did this to me, if I thought I could win, I’d sue him for what he put me through, for what he put my beautiful husband through. I’d sue him for stealing the best years of my fertility, I’d sue him for every tear I cried while under his care, I’d sue him for the pregnancies lost while under his care, I’d sue him for every wasted cent spent on 3 IVF’s, on PGD, on IUI’s, on endless rounds of timed & medicated cycles. If I thought I’d get away with it, I’d even use his name right here, I’d tell you all which clinic he operates from but sadly, he is offered a level of protection that I was never given!
So here goes:
After my 3rd miscarriage, W and I decided that it was time to look into further investigative testing to try and establish the problem. We started doing some research online and via our GP and my Gynae. All of them recommended this clinic, and I was quite pleased to see that they were so prominent in the infertility community, they seemed very popular on the support forums, and featured in a lot of TV shows & magazine articles on infertility. Off we went for our long awaited first appointment. The further investigative testing involved a few blood tests, a scan and a laproscopy for fibroid removal. We started with our first timed cycle and at the first scan he slammed on the breaks saying that my follicle had come up on the side where I had a “blocked” fallopian tube and that the cycle was a bust. Well wouldn’t you just know it??? We achieved a chemical pregnancy that cycle, the cycle he said would fail because of my damaged tube. From there followed rounds and rounds and rounds of failed timed cycles, then our first IVG with PGD failed, our second natural IVF got cancelled due to no fertilization, the third IVF failed and a lot of other things that out of respect for my DH’s wishes I will not ever discuss on my blog. At the end of it all, at our follow up session after all the failed cycles, do you know what he told me the issue was???? Egg quality related to life style issues!!!!!
I took a long break after that and during that time, I heard from a friend of mine, who’d also been with this RE and had moved clinics and finally gotten a diagnosis and she was shocked and infuriated with the previous clinic. So off I went to visit this new clinic, Vitalab, I took a copy of my file from the previous clinic with me and they immediately informed me that there were a bunch of tests missing. Get this, I’d never had an HSG before, I’d never had an AHM or FSH test done and we’ve never undergone HLA studies. Duly we went through all the testing and boy oh boy was I shocked. The simplest and most basic of all the test was the HSG, which was never done at my previous clinic, showed SHOCKING results!!! I’ll have to list them because there were so many issues:
- Uterine scarring – presumably from when my previous RE removed the fibroid as he was the only one who had operated on my uterus.
- A partial septum – one of the major causes of recurrent miscarriage
- A uterine polyp – another cause of miscarriages
- Hydrosalpinges – my hydrosalpinges was so severe that what my previous RE had referred to as a “blocked” tube was in fact a pus filled tube and a major reason for all my treatment failures and miscarriages
So, I spent 4 years at my previous clinic, I spent a small fortune on fertility treatment with them and all the time we had NO CHANCE of success because of all my internal issues, none of which related to “lifestyle” issues as my previous RE had said! I had another laproscopy with Dr G at Vitalab and he repaired all the damage. My first IVF at Vitalab was performed this year and although we never got pregnant from the IVF, the results were astounding in comparison to the IVF’s I’d had at that previous clinic. I had a way higher egg yield and very good egg quality and fabulous embryo quality, all of which grew to blasto stage. The Dr’s at Vitalab all agreed that IVF patients with embryo quality and quantity like mine are few and far between, so so much for “lifestyle” issues.
So the lesson is this: Our RE’s are not God, we have the right to question them, if something seems off, or you’ve spent years at one clinic without success of a diagnosis, get a second opinion. Do NOT make the same mistakes as me, DO NOT accept everything your RE says as the gospel. If you’ve had loads of IVF failures, then question RE as to why he won’t do an HLA study, or check your AMH or FSH levels. And most importantly INSIST on an HSG!!!
Question everything and get a second opinion!